Showing posts with label chronic pain. Show all posts
Showing posts with label chronic pain. Show all posts

Thursday, August 4, 2016

Braving new beginnings.

Today I came to the painful realization that some things will never change. I've been holding my breath for so long hoping the things the I've come so accustomed to would magically change for the good. I have been so wrong for so long. I have grown breathless. I can no longer keep up this internal battle.



Which means, I have to stop waiting and finally start living. I've felt trapped for so so long.

Trapped in a place that causes hurt and pain.

Trapped in a town that feels broken.

Trapped between suffering and stubbornness.
Trapped between what my heart wants to do and what my body says I can do.
Trapped between a desire to spread my wings - but not ever knowing if I can do that. Waiting ever patiently for circumstances to change and eagerly anticipating that days arrival. Yet, it hasn't come. The day isn't even in sight. Only dreams of what could be exist in this tiny town. 

So here I am, a bit broken. Beat up. Bent. Now stricken with new wounds just when I thought I was healing. I guess this is the process though right? Its not an easy one. Its not a 'one click' and you're all cleaned kind of thing. As a generally impatient kind of person this kind of "it takes time" healing process is killing me.  And any new adversity adds to my general feeling of being trapped. How do I escape this? I've always made plans. I was almost an over planner for a teenager. But it felt good, I set goals and achieved them in the order I so planned. It felt so satisfying to be in such control of my life. And now, there is no control. Well, maybe it only seems that way.



So that is it, there is my answer. I need to get control again of this beautiful thing called life. I have been kicked down but I am fighting to get back up again. I can't wait for the clouds to lift to start living. I need to live despite the clouds. Figure out new plans. Make new goals. Dream again, and maybe, even accomplish some of those dreams. I don't always have to be trapped.  Sometimes it just takes a painful reminder that I am not actually trapped. Its perspective. Its all in how much you want to make changes. Its all how you view it. Its all within you.  It is all within me.  

Everyday is a new beginning. A clean slate. A fresh start. A chance to heal the wounds that left us the day before completely broken. So today I'm starting over.

I'm still breathing, so I can do this.  And so can you.



If you are feeling broken down and battered you are not alone. But you can do this. One foot in front of the other. Keep breathing. Slow steady steps. One day at a time. Remember it won't be dark forever. 

Thursday, February 18, 2016

From within the womb.

I am seeing my life change before my eyes. I've been given love on a level that shouldn't be ignored. The love that overflows from my daughters, husband, and parents is not something I could ever take for granted. Love from friends showing their support and kindness builds me up and I am eternally grateful for what they have shared with me.
But life is changing. Life on a level that is hard to put into words, but I will try.
Life that begins as a child impatiently waiting for that one particular right of passage, the sign of having finally become a woman. The thought that life could be carried inside mine was always something that filled me with such contentment. I felt whole. I could be a mother I thought. Of course this wouldn't be fulfilled until many years later but it was something I could not wait to have happen to me. And when it did with our first child, she truly made me the person I always longed to be, a mother. And for a while, a damn good mother. I was pleased with what I did with her, how hard I loved her and how I would empty my soul on her behalf.Sickness set in not long after she was born. But having a newborn made me move past whatever pain I was experiencing, because at the end of the day I saw this angelic-like-china-doll baby. She was mine, all mine and I couldn't believe it.



Life grew even richer when her sister joined the world. I feared the kind of mother I would be with another little one in tow. Juggling two is sometimes an emotional battle I still fight daily. Do I give too much attention to one and not the other? Am I kind enough to one, or too tough on the other? Up and down, around and around, life spins each day with one question leading to another. Am I a good mother to two children? I am trying, but at times I think failing. Sickness has sucked my spirit up and at times I fear, devoured it. But there are sunny days where I find out that my spirit of love is still there and fighting to get through. However, despite knowing my limitations full and well, occasional dreams of the past come bubbling forward. Dreams I have tried to extinguish on many occasions. But knowing the possibility was still there made it bearable.
And now that possibility is coming to an end.

How does a woman mourn the loss of what makes her unique? Of what makes her special amongst men who walk the earth with all their strong manliness? How does she mourn the loss that life could be carried within her? One day she bares a belly-full with another heart beating inside her and the next there's a real little person to hold onto that is breathing, crying, living, continuing the circle of life.

But then in a matter of minutes that possibility is removed and placed into a sterile silver pan just like that. Sent off for examination by a stranger and then tossed into a hazardous waste container leading to incineration. My womb. The place that cherished my babies before I even could, now destroyed. Why am I being so dramatic? After all, I already know with our current circumstances as they are,  to add another child to our family would be an unwise, unrealistic and probably irresponsible decision to make. My heart is already so full of love now, blessings and beautiful days. In being 100% real, I actually don't want another child. In fact I am straight up terrified of that happening, knowing what my limitations are right now.  But what if that feeling changed in a few years? Chance gone.
 
However, I think it's more than that. It's the strange disregard for the fist sized organ that made me a mother in the first place. It's the ripping it out and tossing it aside without so much of even a thank you. So for me...... while the Dr works to remove a part of me that now causes pain,  I'm certain as I count backwards from ten while they place the mask over my face, tears of appreciation for the 77 weeks (collectively) of precious protection it gave my babies will flow from my eyes.  

So when it's all said & done and March 1st at 11am has come and gone, I know that I am not losing what makes me a woman. I'm still me.  I am simply recreating myself. Finding myself to freedom. Finding a way to not live in fear of unnecessary pain. Not that pain will be gone from my life,  but pain that *maybe* in one area of my body, I don't have to have anymore. Sitting here not doing anything won't fix the problem. So I have to roll the dice. I may win,  I may even lose. But if I don't try I will never know. And as far as dreams go I've had the most important ones fulfilled, which was to become a mother to two beautifully different and wonderfully whimsical daughters. And for that,  I am eternally grateful.


Tuesday, August 25, 2015

Breathe in. Breathe out.



The carousel never stops. Life is like that. It doesn't stop to say "sorry",   "excuse me for messing up your plans" or even "hope you can handle this pile of garbage I just gave you."

I have been bitter for far too long. Bitter that my children's childhood has been stained for me. Bitter that my normal is a regular persons sick day. Bitter that my days are about choices and balance and picking and choosing what I can or CANNOT do.  Bitter that a family vacation comes with a long list of necessary items just to not end up in the hospital. Bitter that when I say "I'm ok"  I'm almost always lying and under this made-up face,  I simply wish people knew how I really felt. 

But that's not how I want to be remembered. I don't want to be the one who couldn't see the beauty surrounding me. In the funk I've so fiercely simmered in the last two days, it has left me with eyes wide open. Yes, I have limitations. Yes, I want to do more than I can. Yes, my life is different. But I am above ground and not below it. I am breathing and even though sometimes even that hurts, my heart is still beating. Despite the uncountable times this heart has been broken for whatever reason, it keeps beating. I'm taking a lesson from this heart. It just keeps going. And even though at times it lets everyone know that some things just aren't right, it doesn't give up just because it had a bad day. That's how I hope to be remembered. Not willing to ever give up and at least trying to smile through the pain. 

So for now I'll breathe in, breathe out, and enjoy the fact that I can watch my babies grow and love them until they cannot stand it. 

For in this moment, this is the carousel I'm riding. 


Sunday, August 2, 2015

Hold on.

Yesterday I jumped head first out of my protective box of careful living and took our daughter to her first ever concert. She was beyond thrilled. But it meant standing in line and in the sun for hours upon hours. We slathered on the sunscreen and I brought a blanket to sit on whenever we needed to. We saw Rachel Platten, Colbie Caillat and Christina Perri. 

To be honest, I was psyched beyond words to see in life the girl who sings "fight song". To be there and yell out to the world  "this is my fight song, take back my life song!" gave me goosebumps and still does. 

But what I took away was actually from Christina Perri, the artist I knew the least about for some strange unexplainable reason. The moment she entered the stage the energy of the crowds changed and we were suddenly awakened with our feet being moved to dance. 



Then at one point she said, "I know there's people out there going through a really hard time and even though you are here today you probably couldn't leave all your troubles behind." And then she sang her song "I believe." It nearly brought me to tears as she sang the following: 

"I believe that tomorrow is stronger than yesterday,
And I believe that your head is the only thing in your way,
I wish that you could see your scars turnin to beauty,
I believe that today it's okay to be not okay;

Hold on, hold on

'Cause I have been where you are before
And I have felt the pain of losing who you are, And I have died so many times, but I am still alive."

Then, she had us, the audience sing this:
This is not the end of me, this is the beginning;
(Hold on)
This is not the end of me, this is the beginning
(Hold on (I am still alive)

*Insert shivers there.* 




The last year of my life this disease raging my body attacked my emotional heart like nothing ever had. I had given up so many times and lost myself along the way. But despite the fact that today I can't even breathe without pain, I am holding on. This isn't the end and yes it may just be the beginning but as each day passes -some worse then others, I can say I made it through, even if I was stumbling and hurting the whole way, I still made it. 











(Picture credit : me :) )